Our Journey Through Craniosynostosis: Redesign and restructuring of a mountain range...

I have been conversing back and forth with Dr. Fearon through email and thus far, I have been incredibly impressed by his demeanor and candor. He’s been very willing and open to list possible other diagnosis for Nathan other than just cranio. One of the other diagnoses he’s looking at would require us to get an MRI of Nathan’s brain. Nathan has had CT imaging done of his brain, but not an MRI. ( A CT scan, looks at the bone structure. A MRI will look at the brain tissue and structure. )

I met with Dr. Willert yesterday, ( Thursday, February 23 ), to discuss getting a referral for Dr. Fearon. I had also called Dr. Fearon’s office yesterday to find out when was the first available appointment he had to meet with us for a consult visit. I was told the absolute earliest would be either March 13 or 14. Either way, we were still looking at two weeks away. I was very comfortable with that time line, because it gave us plenty of time to book airfare and other travel arrangements that would need to be made.

Then, like I have grown accustomed too, everything changed. My appointment with Dr. Willert was at 1 pm and I was walking out of the Naval Hospital at 2:30 pm. Still amazed, she continuously asked what else she could do for us and in what other ways could she help. I have a direct phone number to my pediatrician’s nurse and I can get in and see her in 24 hours. I have a pediatrician who truly goes beyond the cliché of treating her patients as if they were her own children. She loves and adores Nathan the way in which we do. The way his Mimi and Gampa do. I can’t tell her what else she could do for us, because I truly don’t feel or believe such a thing exists!

I left Dr. Willert’s office, as I do every time, with a plan of what to do next. Dr. Willert wanted to talk to Dr. Fearon’s office to become more familiar with him. I, on the other hand, was supposed to wait until Friday, ( February 24 ), at noon and call Dr. Fearon’s office to schedule a consult visit. By the time I had made the commute back to my house from the Naval Hospital, Dr. Willert called me back and informed me she had spoken with Cindy, Dr. Fearon’s nurse. She was incredibly impressed with Cindy’s knowledge and definitely agreed we were heading in the right direction. Dr. Willert’s comfort and confidence in Dr. Fearon, was of the upmost importance to me. Dr. Fearon, might see Nathan for a couple of hours, maybe a couple of visits, but Dr. Willert will be seeing Nathan for years.

I hung up the phone with Dr. Willert and Cindy, Dr. Fearon’s nurse, called me. She informed me that Dr. Fearon would be in surgery on Friday, March 1^st. He had 2 CVR’s, ( the type of surgery Nathan will most likely need ), scheduled, but he was completely willing to meet with us between those 2 surgeries, if we were interested. I literally jumped for joy and trust me, see a 29.5 week pregnant woman jumping for joy is not a sight, I would encourage. We would need to get a MRI scheduled for Nathan, but if it was something that couldn’t be done locally we could do it in Dallas, Friday morning before we met with Dr. Fearon. Our phenomenal ped’s office was able to get us a MRI locally, this coming Monday, ( February 27 ), at noon.

I sit here a little over 12 hours after everything has happened and I am amazed at God’s workmanship. How He can orchestrate things and literally move mountains for our family. Yesterday afternoon showed me more than ever that God’s got this. He’s in control of both the big and little things and I truly don’t know if I’ve ever felt at more peace over knowing that we’re not alone in this. Yes, things change in an instant, but for right now, for this moment, I’m in complete peace knowing my heavenly father has brought us this far and He’s not through with us just yet.

It’s 6 am on Friday, February 24. Nathan has his ophthalmology visit today at 10 am. We literally take things one day, sometimes even one hour, at a time. We’re going to get through this. I know it’s not going to be easy and it has proven itself to not be, thus far, but we’re going to get through this!